What if Patients and Patient Advocates Spoke About Clinical Trial Participation and the Key Issues that Affected Trial Participation?

September 4, 2019

Steve Smith | President, Patient Advocacy, WCG

Lori Abrams | Senior Director, Advocacy, WCG

What if patients and patient advocates spoke about clinical trial participation and the key issues that affected trial participation?

Now is the time. And there’s no time to wait.
 
At WCG’s upcoming Patient Forum, The Patient’s Voice Can’t Be Ignored in Clinical Research, we’ll be  discussing this very topic. The one-day event – hosted on October 23rd in Washington, DC – has been put together to benefit those working in patient advocacy or in biotech/pharmaceutical drug development, and who are looking for ways to make real change to increase the value to patients in clinical research.  
 
We are pleased to announce our keynote speaker is Mary Elizabeth Williams, author of “A Series of Catastrophes and Miracles,” who will underscore that we are missing a critical part of our development team – the patient. A dynamic and inspiring speaker, she speaks from her unique perspective as a patient in a Phase I immunotherapy clinical trial and captivating thought leader.
 
Other panelists for the Forum include engaged patients and patient advocates from a variety of disease backgrounds, who will speak about specific solutions to obstacles in clinical trial participation. Panel topics will focus on:

  • Diversity, inclusion, and meaningful participation in clinical research
  • Patient-friendly research studies
  • Compensation for participation in clinical trials
  • A better informed-consent process
  • Returning data to trial participants 

In addition to the day-long forum, we invite you to attend a welcome reception on October 22nd (the same day that the NORD Summit concludes) in the lobby of the hotel where you’ll have the opportunity to meet with the panelists, as well as attendees from biopharmaceutical sponsors, patient advocacy groups, and patients.
 
For registration and accommodation details, please visit our event page to request your invitation. Please note that seating is limited, and priority will be given to Patient Advocacy Groups, patients, and biopharma colleagues in patient-focused roles. 


WCG is a clinical research services organization focused on the ethical treatment of participants in clinical trials and a wide range of solutions that give patients information, genetic testing, enrollment assistance, networking tools, and increase the likelihood that clinical trials will successfully result in new, better medicines for unmet medical needs. www.wcgclinical.com

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