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Panel 4: Patient-Friendly Studies

January 27, 2020

Patient-Friendly Studies: Gaining Effective Input Along the Drug-Development Continuum

One of a series of live panels recorded at the WCG Patient Advocacy Forums in Washington D.C. in October, 2019.

How do we make clinical studies more patient-centric? What does “patient-centric” even mean? 

Steven Taylor, president and CEO of the Sjogren’s Foundation and Ellen Wagner of Parent Project Muscular Dystrophy (PPMD)—and the parent of a son with Duchenne Muscular Dystrophy (DMD)—shared their insights into how patients and advocates can amplify their voices and provide meaningful input into clinical trials. Danya Kaye, director of business development, R&D and innovation at Inspire, led the conversation. 

Click the slides above, or download the PDF to read insights on this topic from patients, patient advocates, and industry leaders.

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Panel 5: Returning Study Results to Participants
Panel 5: Returning Study Results to Participants

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Panel 3: Improving the Informed Consent Process
Panel 3: Improving the Informed Consent Process

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