2022 WCG Patient Forum

Being the First Patient Dosed in a Life-Saving, Ground-Breaking, Pediatric Clinical Trial

This session will discuss family collaboration with dedicated professionals to create breakthrough therapies via life changing clinical trials.

Speaker:
Ryan Dant – Patient Advocate and Rare Disease Patient

Moderator:
Steve Smith – President, WCG Patient Advocacy

Father of Two Boys with Rare Neurological Disease in Pediatric Clinical Trials

Learn about the challenges and reasons for family participation in clinical trials to better understand complex physical and neurological disorders.

Speaker:
Mike Hu, PhD, Molecular Genetics and Microbiology – Father of two boys with Hunter Syndrome

Moderator:
Steve Smith – President, WCG Patient Advocacy

From Patient to Clinical Trial Participant

Hear about the interaction of patients and clinicians in a clinical trial versus in a routine clinician-patient relationship. Additionally, the speakers will touch on what clinical trial participants should know about endpoints, the placebo effect, and methods for collecting quality data, in order to contribute to the successful conduct of a clinical trial.

Speakers:

• Jan Sedway, PhD – VP Clinical Science, WCG Clinical Endpoint Solutions
• Stacey Rumerman, PsyD – Director, Clinical Science, WCG Clinical Endpoint Solutions

Moderator:
Mark Opler, PhD, MPH – Chief Research Officer, WCG Clinical Endpoint Solutions

A Patient Advocate Puts Stigma Aside to Ask a Clinician About Epilepsy

Hear how collaboration between patient and a medical team can provide better understanding of complex disorders, and serve as a model of speaking openly to overcome stigma for better health.

Speaker:

• Scott Hunter, PhD – Senior Scientific Expert, Neurodevelopment Disorders, WCG Clinical Endpoint Solutions. Pediatric Neuropsychologist and Licensed Clinical Psychologist.
• Lauren Panco – Epilepsy Patient Advocate

Moderator:
Steve Smith – President, WCG Patient Advocacy

Speaking To Our Communities: Men Standing Up to Cancer Together

Hear about the life-saving importance of avoiding isolation by speaking with others about diagnosis, bonding with other advocates, and helping communities overcome stigma to “get checked and treated.”

Speakers:

• Kevin Warmack – Prostate Cancer Survivor and Patient Advocate
• Trevor Maxwell – Cancer Patient and Founder, Man Up To Cancer

Moderator:
Steve Smith – President, WCG Patient Advocacy

Supporting Children When Parents Live with Cancer Diagnosis

Learn how to support the children and family members of cancer patients through their journeys.

Speakers:

• Shoni Power – Mother, Breast Cancer Warrior, Patient Advocate
• Deanna Smith, CCLS – Certified Child Life Specialist, Program Director, Wonders and Worries

Moderator:
Sandra Smith, RN, MSN, AOCN – Senior Vice President, WCG Clinical Solutions & Strategic Partnerships

Technology for More Inclusive Clinical Trials

Join WCG’s Chief Product Officer, Rahul Bafna to hear about the key ways to use technology to ease patient burden, be inclusive, and modernize clinical research.

Speaker:
Rahul Bafna – Chief Product Officer, WCG

Moderator:
Steve Smith – President, WCG Patient Advocacy

Optimism and Inclusion in Alzheimer’s Clinical Trials

Hear reasons for optimism and learn methods for being more inclusive and successful in Alzheimer’s research.

Speakers:

• Kathleen Welsh-Bohmer, PhD – Professor of Psychiatry & Neurology, Duke University
• Dr. Michael Poku, MD, MBA, FACP – Senior Medical Director, Oak Street Health

Moderator:
Chris Brady, PsyD – Vice President, Clinical Science, WCG Clinical Endpoint Solutions

A Program of Support for Families and Caregivers of People Living with Cancer

Learn ways to help patients and families through challenging diagnosis, treatment, and clinical trial journeys.

Speaker:
Susan Ash-Lee, MSW, LCSW – Senior Vice President, Clinical Programs and Education, The Cancer Support Community

Moderator:
Sandra Smith, RN, MSN, AOCN – Senior Vice President, WCG Clinical Solutions & Strategic Partnerships

Putting A Clinical Trials Research Site in an Underserved Community

Learn about establishing presence, commitment, and trust to bring trials and better health to underserved communities.

Speaker:
Nadege Gunn, MD, CPI– Medical Director and President, Impact Clinical Research

Moderator:
Sandra Smith, RN, MSN, AOCN – Senior Vice President, WCG Clinical Solutions & Strategic Partnerships

Reaching Underserved Communities To Counter Cancer’s Severe Impact

This panel discussion will cover solutions that work to overcome bias, reduce health disparities, and modernize inclusion in clinical trials.

Speakers:

• LaShell Robinson, MS – Director, Diversity, Equity & Inclusion in Clinical Research, Global Development Office, Takeda Pharmaceutical Co.

• Maimah Karmo – Breast Cancer Survivor, Patient Advocate; CEO and Founder of the Tigerlily Foundation
• Kimberly R. Wilson-Lewis, PhD, CCC – Speech & Language Pathology, BCMAS; Clinical Scientist, WCG Endpoint Solutions Group

Moderator:
Steve Smith – President, WCG Patient Advocacy

Let’s get to work.

The WCG Patient Forum is an ongoing effort to elevate the voices of expert patients, patient advocates, and professionals in health care and drug development who speak of issues and solutions of critical value to patients.

We need your voice to be part of the conversation. Let’s collaborate and find solutions and ultimately bring better health and medicine to people everywhere.