WCG Patient Forum

WCG's Patient Forum interviews elevate the voices of expert patients, patient advocates, and industry professionals who speak of issues and solutions of critical value to patients.

  • Family Concerns and Stress About Going Back Into Public During the Pandemic23:42

    Family Concerns and Stress About Going Back Into Public During the Pandemic

    The Working Parents of WCG is an Employee Resource Group that meets to discuss topics of interest to working parents. This discussion regards our desire as parents to do the best for our children by

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  • Patient Advocacy Leadership at Its Finest. The Global Liver Institute Rallies Stakeholders to Face Down Liver Disease for Many.30:42

    Patient Advocacy Leadership at Its Finest. The Global Liver Institute Rallies Stakeholders to Face Down Liver Disease for Many.

    Donna Cryer, JD, is the Founder and CEO of the Global Liver Institute, a patient advocacy group with a substantial reach and impact in the fight against liver disease. She speaks of the broad spectr

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  • The Sickle Cell Disease Association of America Empowers Research and Better Health Care25:06

    The Sickle Cell Disease Association of America Empowers Research and Better Health Care

    Beverley Francis-Gibson is the President and Chief Executive Officer of the Sickle Cell Disease Association of America (SCDAA), a 49-year-old organization that advocates for people affected by sickle

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  • Using Data to Bring Change for Minority Health: An Interview with Dr. Gary Puckrein, President & CEO of the National Minority Quality Forum24:24

    Using Data to Bring Change for Minority Health: An Interview with Dr. Gary Puckrein, President & CEO of the National Minority Quality Forum

    Dr. Gary Puckrein, President and CEO of the National Minority Quality Forum, a not-for-profit, non-partisan organization dedicated to ensuring that high-risk racial and ethnic populations receive opti

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  • Cell and Gene Therapy Clinical Trials and Patients at a New Frontier in Drug Development52:45

    Cell and Gene Therapy Clinical Trials and Patients at a New Frontier in Drug Development

    This panel discussion on Cell and Gene Therapy has something for all stakeholders in clinical research. It provides an introduction to and education about clinical trials in this emerging area of dru

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  • N-Lorem Founder Discusses Advancements in Genome Sequencing, Newborn Screening, Regulatory Approaches, and Collaboration with Patients32:03

    N-Lorem Founder Discusses Advancements in Genome Sequencing, Newborn Screening, Regulatory Approaches, and Collaboration with Patients

    Stanley Crooke, MD, PhD, talks about his non-profit, which brings the benefits of modern biotechnology to patients with serious, ultra-rare disorders. His pioneering research has led to first-time tr

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  • Increasing Capacity to be More Inclusive and Reduce the Negative Impact on Health of Stigma, Discrimination and Mistrust26:15

    Increasing Capacity to be More Inclusive and Reduce the Negative Impact on Health of Stigma, Discrimination and Mistrust

    Tim Vincent helps organizations increase their capacity to be more inclusive and reduce the negative impact on health of stigma, discrimination, and mistrust. He speaks of his experience training he

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  • Married Couple Face Down Rare Disease Together27:06

    Married Couple Face Down Rare Disease Together

    Married couple Sarah and Troy Tompkins are a formidable pair when it comes to dealing with her serious rare disease – whether at home, in the hospital, in the public eye, or on Capitol Hill. Sarah’s

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  • Speaking out: Stigma, caregiver stress and serious disease.35:00

    Speaking out: Stigma, caregiver stress and serious disease.

    Speaking out: Stigma, caregiver stress, and serious disease. Learn about this couple’s harrowing journey, life-saving action, and use of their voices to help others. Daniel Garza and Christian Rami

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  • Mental Health Services for an Underserved LatinX Community16:06

    Mental Health Services for an Underserved LatinX Community

    Arturo Carrillo, who has a PhD in social work and is a Licensed Clinical Social Worker, talks about his research into mental health disparities in Chicago’s underserved Latinx neighborhoods, and his

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  • Rare Disease Economic Burden Study and the Impact on Families and Society28:04

    Rare Disease Economic Burden Study and the Impact on Families and Society

    Marissa Penrod, a patient advocate Mom, and Annie Kennedy, Chief of Policy and Advocacy for the EveryLife Foundation for Rare Diseases, talk about the recently released Rare Disease Economic Burden St

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  • Sue Peschin, President and CEO of Alliance for Aging Research, speaks about priorities in research, legislation, and awareness to benefit fa26:21

    Sue Peschin, President and CEO of Alliance for Aging Research, speaks about priorities in research, legislation, and awareness to benefit fa

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  • Providing Mental Health Services in Underserved Asian Communities17:54

    Providing Mental Health Services in Underserved Asian Communities

    Melissa Wee, Licensed Clinical Professional Counselor, from the Midwest Asian Health Association, speaks of providing mental health services to underserved Asian immigrant population thanks to a grant

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  • Mental Illness: Patient Advocate Wenora Johnson speaks of her family and coping with mental illness in minority communities.14:23

    Mental Illness: Patient Advocate Wenora Johnson speaks of her family and coping with mental illness in minority communities.

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  • Diversifying Parkinson's Trials30:45

    Diversifying Parkinson's Trials

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  • Sponsor Perspective: Diversify Your Clinical Trials Like This!17:12

    Sponsor Perspective: Diversify Your Clinical Trials Like This!

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  • Diversify Your Clinical Trials Like This! Preparing Communities, Physicians, Families26:30

    Diversify Your Clinical Trials Like This! Preparing Communities, Physicians, Families

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  • Clinical Trials and Underserved Community Health Centers27:15

    Clinical Trials and Underserved Community Health Centers

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  • Sickle Cell Disease: Rare Disease Minority Patients Face Access Challenges9:29

    Sickle Cell Disease: Rare Disease Minority Patients Face Access Challenges

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  • Build Trust with Language, Culture, and Commitment10:54

    Build Trust with Language, Culture, and Commitment

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