WCG Patient Forum
WCG's Patient Forum interviews elevate the voices of expert patients, patient advocates, and industry professionals who speak of issues and solutions of critical value to patients.
Family Concerns and Stress About Going Back Into Public During the Pandemic
The Working Parents of WCG is an Employee Resource Group that meets to discuss topics of interest to working parents. This discussion regards our desire as parents to do the best for our children by
Patient Advocacy Leadership at Its Finest. The Global Liver Institute Rallies Stakeholders to Face Down Liver Disease for Many.
Donna Cryer, JD, is the Founder and CEO of the Global Liver Institute, a patient advocacy group with a substantial reach and impact in the fight against liver disease. She speaks of the broad spectr
The Sickle Cell Disease Association of America Empowers Research and Better Health Care
Beverley Francis-Gibson is the President and Chief Executive Officer of the Sickle Cell Disease Association of America (SCDAA), a 49-year-old organization that advocates for people affected by sickle
Using Data to Bring Change for Minority Health: An Interview with Dr. Gary Puckrein, President & CEO of the National Minority Quality Forum
Dr. Gary Puckrein, President and CEO of the National Minority Quality Forum, a not-for-profit, non-partisan organization dedicated to ensuring that high-risk racial and ethnic populations receive opti
Cell and Gene Therapy Clinical Trials and Patients at a New Frontier in Drug Development
This panel discussion on Cell and Gene Therapy has something for all stakeholders in clinical research. It provides an introduction to and education about clinical trials in this emerging area of dru
N-Lorem Founder Discusses Advancements in Genome Sequencing, Newborn Screening, Regulatory Approaches, and Collaboration with Patients
Stanley Crooke, MD, PhD, talks about his non-profit, which brings the benefits of modern biotechnology to patients with serious, ultra-rare disorders. His pioneering research has led to first-time tr
Increasing Capacity to be More Inclusive and Reduce the Negative Impact on Health of Stigma, Discrimination and Mistrust
Tim Vincent helps organizations increase their capacity to be more inclusive and reduce the negative impact on health of stigma, discrimination, and mistrust. He speaks of his experience training he
Married Couple Face Down Rare Disease Together
Married couple Sarah and Troy Tompkins are a formidable pair when it comes to dealing with her serious rare disease – whether at home, in the hospital, in the public eye, or on Capitol Hill. Sarah’s
Speaking out: Stigma, caregiver stress and serious disease.
Speaking out: Stigma, caregiver stress, and serious disease. Learn about this couple’s harrowing journey, life-saving action, and use of their voices to help others. Daniel Garza and Christian Rami
Mental Health Services for an Underserved LatinX Community
Arturo Carrillo, who has a PhD in social work and is a Licensed Clinical Social Worker, talks about his research into mental health disparities in Chicago’s underserved Latinx neighborhoods, and his
Rare Disease Economic Burden Study and the Impact on Families and Society
Marissa Penrod, a patient advocate Mom, and Annie Kennedy, Chief of Policy and Advocacy for the EveryLife Foundation for Rare Diseases, talk about the recently released Rare Disease Economic Burden St
Sue Peschin, President and CEO of Alliance for Aging Research, speaks about priorities in research, legislation, and awareness to benefit fa
Providing Mental Health Services in Underserved Asian Communities
Melissa Wee, Licensed Clinical Professional Counselor, from the Midwest Asian Health Association, speaks of providing mental health services to underserved Asian immigrant population thanks to a grant
Mental Illness: Patient Advocate Wenora Johnson speaks of her family and coping with mental illness in minority communities.
Diversifying Parkinson's Trials
Sponsor Perspective: Diversify Your Clinical Trials Like This!
Diversify Your Clinical Trials Like This! Preparing Communities, Physicians, Families
Clinical Trials and Underserved Community Health Centers
Sickle Cell Disease: Rare Disease Minority Patients Face Access Challenges
Build Trust with Language, Culture, and Commitment