WCG Patient Forum

The 2021 WCG Patient Forum is on November 10: LEARN MORE & REGISTER

The map below displays WCG locations. The same locations are listed below the map.

About the WCG Patient Forum

This year’s WCG Patient Forum: A Call to Action for Clinical Research Stakeholders & Participants to Drive the Change We Need Now, is a virtual, online broadcast of a series of discussions with leading voices in patient advocacy and clinical research. The individuals represented at the forum emphasize actions that can be taken to improve the development of treatments for unmet medical needs by directly addressing obstacles and provide solutions that can be put into practice today.

Biopharmaceutical companies, CROs, research sites, patients, and the general public are invited to tune in and learn about practical recommendations that aim to make clinical trials more successful for more patients. Nowhere else will attendees find a way to connect every facet of the patient experience and hear first-hand from patients themselves, as well as leading voices in patient advocacy and clinical research.

*If you’re unable to join us for the live event on November 17th, we encourage you to still register so that we can communicate information regarding the on-demand series of this broadcast.

Agenda:

The bright and engaging minds on each of these panel discussions focus on an array of important topics critical to driving progress in clinical research:

Steve Smith – Opening Statement

Kimberly Richardson – My family, my community, my cancer, and COVID

Lori Abrams – Diversity & Inclusion

WCG Patient Radio – Voices of transformation in drug development

Diagnostic Odyssey: Persistent Patients Drive Better Outcomes

Access Issues Cause Health Disparities: Site Perspective – A Call to Action

Diversifying Parkinson’s Trials, The Michael J Fox Foundation, Fire Up Parkinson’s

Sickle Cell Disease – Rare Disease Minority Patients Face Access Challenges

Diversify Your Clinical Trials Like This! A Call to Action – Sponsor Perspective

Diversify Your Clinical Trials Like This! – Preparing Communities, Physicians, Families

Mentor Minority Students for Careers in Medicine and Research – A Call to Action!

Black Health Matters: Transforming Minority Community Health

Theater for An At-Risk Community: Daddy’s Boys, A Prostate Health Call to Action

Diversify Your Clinical Trials Like This! – Clinical Trials and Underserved Community Health Centers

Diversify Your Clinical Trials Like This! – Build Trust with Language, Culture, and Commitment. “Promotores” Reach Hispanic Families Living With Parkinson’s

Build a Trial-Savvy Patient Population That Finds and Understands Clinical Trials – Rett Syndrome Foundation

Engage Communities Like This! – Patient Collaboration and Community Health Centers in Lung Cancer Research

Access Challenges: Patients Connecting To Clinical Trials

Alzheimer’s Disease – A Patient Speaks

Alzheimer’s Stories – A Choral Performance that Educates

Speakers:

At the event, you’ll get a chance to hear from leaders of advocacy groups, institutions, and clinical research providers such as:

Adriana Jimenez
CEO, Give For A Smile

André J. Thomas, DMA
Conductor, Alzheimer’s Stories

Angie V. Sanchez, MD
Research Fellow, The CARE Research Center at Massachusetts General Hospital – Harvard Medical School

Bernadette Siddiqi
Associate Director, Michael J. Fox Foundation for Parkinson’s Research

Bonnie Addario
Co-Founder and Chair, Go2Foundation

Bryce Olsen
Global Strategist Health and Life Sciences Intel Corporation, Founder of ‘Sequenceme.org”, Advanced Cancer and Genomic Sequencing Patient Advocate

Charlotte D. Owens, MD, FACOG
Therapeutic Area Lead, U.S. Medical Affairs, Women’s Health, AbbVie

Christopher Gantz
Senior Director Regional Liaison Office, Thomas Jefferson University Sidney Kimmel Cancer Center

Dana Deighton
Project Manager at Inspire, Executive Board Member, ECAN, Patient Advocate

Dominique Pichard, MD
Chief Science Officer, International Rett Syndrome Foundation, Patient Advocate Mom

Dorelia Rivera
Autoinflammatory Alliance, Patient Advocate Mom

Edith Mitchell, MD
Sidney Kimmel Cancer Center

Gregory Hall, MD
Primary Care Physician, Cleveland, OH, Professor, Northeast Ohio Medical University

Herschel Garfein
Lyricist, Alzheimer’s Stories

Hong Liu, PhD
Executive Director, Midwest Asian Health Association (MAHA)

Jeffrey Borghoff
National spokesperson, Alzheimer’s Association and board member of the Greater New Jersey chapter, Patient Advocate

Jeffrey Cooper, MD, MMM
Vice President of Process & Strategic Improvement, WCG, Patient Advocate

Jonathan Jackson, PhD
Executive Director, CARE Research Center

Karlin Schroeder, MA
Senior Director, Community Engagement, Parkinson’s Foundation

Karmen Trzupek, MS, CGC
Director, Clinical Trial Services & Rare Disease Genetics Services, InformedDNA

Kimberly Richardson
Research Advocate working with cancer survivors in the University of Illinois Cancer Center

Lakiea Bailey, PhD
Executive Director, Sickle Cell Consortium, Patient Advocate

LaTasha Lee, PhD, MPH
Vice President, Social and Clinical Research & Development, at the National Minority Quality Forum

Lauren Ozmore
Patient Advocate, Executive Producer WCG Patient Radio

Lisa Deck
Board Member, Rare New England, Patient Advocate, Stroke Survivor

Lori Abrams
Executive Director, Patient Advocacy & Diversity, WCG

Mark Nathanson, MD
Director, Fellowship in Geriatric Psychiatry, Clinical Assistant Professor, Columbia University

Melissa Kennedy
Executive Director, International Rett Syndrome Foundation

Michael S. Fitts
Parkinson Patient Advocate

Michael Poku, MD, MBA
Senior Medical Director at Oak Street Health

Robert Cohen
Composer, Alzheimer’s Stories

Roslyn Daniels
President and Founder, Black Health Matters

Ruby Rendon
Patient Navigation & Outreach Coordinator, Muhammad Ali Parkinson Center at Barrow Neurological Institute

Soojin Jun, PharmD
Board Certified Geriatric Pharmacist & Patient Safety Advocate

Steve Smith
President, Patient Advocacy, WCG

Thomas Farrington
Founder, Prostate Health Network