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Fibromuscular Dysplasia Society of America: Collaboration Between Patients, Researchers, and Physicians Saves Lives

About this Episode

In this episode we speak with Pam Mace, Patient, Executive Director and Co-founder of the Fibromuscular Dysplasia Society of America.

Without a cure, this patient advocate collaborated with researchers from Mt. Sinai, and the Victor Chang Cardiac Research Institute and catalyzed a growing patient advocacy movement that drives information exchange, physician education, and data collection.