Four studies quantify the economic burden of rare diseases. The results show a way forward to saving families and society in excess of $1 trillion.
Details in this interview with Annie Kennedy, Chief of Policy, Advocacy, and Patient Engagement with the EveryLife Foundation for Rare Diseases, and Dr. Joni L. Rutter, Ph.D., Acting Director, NIH, National Center for Advancing Translational Sciences (NCATS) and Steve Smith, Rare Disease Parent and President of Patient Advocacy at WCG.