The 2020 WCG Patient Forum: A Call to Action for Clinical Research Stakeholders & Participants to Drive the Change We Need Now, is a virtual broadcast of discussions with leading voices in patient advocacy and clinical research. The individuals represented at the forum emphasize actions that can be taken today to improve the development of treatments for unmet medical needs.
Biopharmaceutical companies, CROs, research sites, patients, and the general public are invited to tune in and learn about practical recommendations that aim to make clinical trials more successful for more patients. Nowhere else will attendees find a way to connect every facet of the patient experience and hear first-hand from patients themselves, as well as leading voices in patient advocacy and clinical research.
Click here to view Patient Forum recordings.
Join speakers from these organizations and many others:
A Preview of the Forum:
The map below displays WCG locations. The same locations are listed below the map.
Agenda:
The bright and engaging minds on each of these panel discussions focus on an array of important topics critical to driving progress in clinical research:
Steve Smith – Opening Statement
Kimberly Richardson – My family, my community, my cancer, and COVID
Lori Abrams – Diversity & Inclusion
WCG Patient Radio – Voices of transformation in drug development
Diagnostic Odyssey: Persistent Patients Drive Better Outcomes
Access Issues Cause Health Disparities: Site Perspective – A Call to Action
Diversifying Parkinson’s Trials, The Michael J Fox Foundation, Fire Up Parkinson’s
Sickle Cell Disease – Rare Disease Minority Patients Face Access Challenges
Diversify Your Clinical Trials Like This! A Call to Action – Sponsor Perspective
Diversify Your Clinical Trials Like This! – Preparing Communities, Physicians, Families
Mentor Minority Students for Careers in Medicine and Research – A Call to Action!
Black Health Matters: Transforming Minority Community Health
Theater for An At-Risk Community: Daddy’s Boys, A Prostate Health Call to Action
Diversify Your Clinical Trials Like This! – Clinical Trials and Underserved Community Health Centers
Diversify Your Clinical Trials Like This! – Build Trust with Language, Culture, and Commitment. “Promotores” Reach Hispanic Families Living with Parkinson’s
Build a Trial-Savvy Patient Population That Finds and Understands Clinical Trials – Rett Syndrome Foundation
Engage Communities Like This! – Patient Collaboration and Community Health Centers in Lung Cancer Research
Access Challenges: Patients Connecting to Clinical Trials
Alzheimer’s Disease – A Patient Speaks
Alzheimer’s Stories – A Choral Performance that Educates
Speakers:
At the event, you’ll get a chance to hear from leaders of advocacy groups, institutions, and clinical research providers such as:
Adriana Jimenez
CEO, Give For A Smile
André J. Thomas, DMA
Conductor, Alzheimer’s Stories
Angie V. Sanchez, MD
Research Fellow, The CARE Research Center at Massachusetts General Hospital – Harvard Medical School
Bernadette Siddiqi
Associate Director, Michael J. Fox Foundation for Parkinson’s Research
Bonnie Addario
Co-Founder and Chair, Go2Foundation
Bryce Olsen
Global Strategist Health and Life Sciences Intel Corporation, Founder of ‘Sequenceme.org”, Advanced Cancer and Genomic Sequencing Patient Advocate
Charlotte D. Owens, MD, FACOG
Therapeutic Area Lead, U.S. Medical Affairs, Women’s Health, AbbVie
Christopher Gantz
Senior Director Regional Liaison Office, Thomas Jefferson University Sidney Kimmel Cancer Center
Dana Deighton
Project Manager at Inspire, Executive Board Member, ECAN, Patient Advocate
Dominique Pichard, MD
Chief Science Officer, International Rett Syndrome Foundation, Patient Advocate Mom
Dorelia Rivera
Autoinflammatory Alliance, Patient Advocate Mom
Edith Mitchell, MD
Sidney Kimmel Cancer Center
Gregory Hall, MD
Primary Care Physician, Cleveland, OH, Professor, Northeast Ohio Medical University
Herschel Garfein
Lyricist, Alzheimer’s Stories
Hong Liu, PhD
Executive Director, Midwest Asian Health Association (MAHA)
Jeffrey Borghoff
National spokesperson, Alzheimer’s Association and board member of the Greater New Jersey chapter, Patient Advocate
Jeffrey Cooper, MD, MMM
Vice President of Process & Strategic Improvement, WCG, Patient Advocate
Jonathan Jackson, PhD
Executive Director, CARE Research Center
Karlin Schroeder, MA
Senior Director, Community Engagement, Parkinson’s Foundation
Karmen Trzupek, MS, CGC
Director, Clinical Trial Services & Rare Disease Genetics Services, InformedDNA
Kimberly Richardson
Research Advocate working with cancer survivors in the University of Illinois Cancer Center
Lakiea Bailey, PhD
Executive Director, Sickle Cell Consortium, Patient Advocate
LaTasha Lee, PhD, MPH
Vice President, Social and Clinical Research & Development, at the National Minority Quality Forum
Lauren Ozmore
Patient Advocate, Executive Producer WCG Patient Radio
Lisa Deck
Board Member, Rare New England, Patient Advocate, Stroke Survivor
Lori Abrams
Executive Director, Patient Advocacy & Diversity, WCG
Mark Nathanson, MD
Director, Fellowship in Geriatric Psychiatry, Clinical Assistant Professor, Columbia University
Melissa Kennedy
Executive Director, International Rett Syndrome Foundation
Michael S. Fitts
Parkinson Patient Advocate
Michael Poku, MD, MBA
Senior Medical Director at Oak Street Health
Robert Cohen
Composer, Alzheimer’s Stories
Roslyn Daniels
President and Founder, Black Health Matters
Ruby Rendon
Patient Navigation & Outreach Coordinator, Muhammad Ali Parkinson Center at Barrow Neurological Institute
Soojin Jun, PharmD
Board Certified Geriatric Pharmacist & Patient Safety Advocate
Steve Smith
President, Patient Advocacy, WCG
Thomas Farrington
Founder, Prostate Health Network