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Amanda Moore: An Inside look at Angelman Syndrome

About this Podcast: 

In this episode, Amanda Moore, CEO of Angelman Syndrome Foundation speaks with Steve Smith, WCG’s President of Patient Advocacy. As a mom whose son has been diagnosed with Angelman Syndrome – a rare neuro-genetic disorder that affects 1 in 15,000 children – Amanda walks through the time from receiving initial diagnosis to the odyssey of her son’s patient journey in therapy and clinical trials.