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Ellyn Getz: Communicating the Value of Clinical Trials to Underserved Minority Communities

About this Episode:

In this episode, we learn about CISCRP’s AWARE for All campaign, which builds awareness of, creates access to and encourages participation in clinical trials. Ellyn Getz, Associate Director of Development and Community Engagement at CISCRP, The Center for Information and Study on Clinical Research Participation, discusses AWARE for All.

CISCRP’s flagship grassroots campaign works with diverse communities around the world to build a greater awareness and understanding of the clinical research process and the role that participation plays in advancing public health. This program is a response to health disparities in these communities—disparities rooted in the long-standing lack of access to healthcare, and gaps in understanding between these communities and the healthcare system.

Each AWARE for All event brings together a diverse array of stakeholders, including community groups, local researchers, patient advocates and community members. “Hearing from local study volunteers and local researchers is one of the most uplifting parts of this program, especially if [attendees] can hear about breakthroughs or really exciting developments and advancements in research that are taking place in their own community,” she reports. 

Weeks of planning with community leaders culminates in a free community health event. Although usually done onsite and in person, the next event, on July 16, will be virtual. This will allow people to watch it live or access the information later. In addition to presentations, it will include a virtual exhibit fair with community health assessments. Details are available here:

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