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Sarah Tompkins, on having Ehlers-Danlos Syndrome, having a mis-understood disease, taking a lead in advocacy

About this Podcast: 

In this episode, Sarah Tompkins, Patient Advocate of Ehlers-Danlos Syndrome, chats with WCG’s President of Patient Advocacy, Steve Smith. During their discussion, Sarah shares with us her experience being a patient with a genetic rare disease who is involved in a clinical trial.